Living With a Urea Cycle DisorderWhatToBringToERNavigating the Emergency Room

Navigating the Emergency Room

Living with a urea cycle disorder (UCD) can sometimes mean unexpected trips to the emergency room. These trips can be frustrating if hospital staff are unfamiliar with UCDs, especially during a crisis when certain tests and treatments need to happen quickly. Having a medical protocol letter to share with hospital staff can save time and help you get what you need.

You can use this guide to help you develop your own medical protocol letter. Work closely with your doctor to be sure that your letter contains all the important information unique to you and how you manage your UCD.

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