When you or a loved one gets diagnosed with a UCD it can be overwhelming. Questions come up right away like, what do I do next? What steps should I be taking? How is this going to change my life? Is there anyone I can talk to about UCDs?
Yes! There is a thriving community of people who have a UCD and those who care for them. Join the UCD in Common Facebook page to connect and hear about others' experiences.
There are many organizations within the UCD community that can provide support along your UCD journey.