As a parent or caregiver of a child with a UCD, you want to do everything you can to help manage his or her disease, both at home and in the classroom. Here are several resources with tips and information to support your child at school, including:
A worksheet for talking about UCDs at school to help your child practice what to say and do if tough situations come up at school.
A downloadable guide to caring for someone with a UCD to help others understand your child’s needs.
Teachers and other education professionals are an important part of your child’s school experience. They can also become a valuable part of his or her regular care team. Taking the time to educate teachers, staff, and administration about UCDs can make managing a UCD at school much easier for everyone. As a parent or caregiver, let them know what a UCD is, how it’s managed, and how to assist you and your child during an emergency. Here are some helpful tools to educate teachers and staff.
The customizable presentation lets you provide a more complete and personalized picture of your child to the school. You can add photos of your child, list their favorite movies and books, add fun facts, and more to help you educate teachers and school staff about your child and his or her UCD. Fill in anything that appears in [BRACKETS], or delete it if it doesn’t apply to your child. If you do not have access to Microsoft PowerPoint®, download Apache Open Office™ for free here and then download the presentation.
Maybe math is a struggle, reading levels aren’t quite where they should be, or socializing is hard. Children with a UCD face many challenges, sometimes including learning.
These 2 free government programs, an Individualized Education Program (IEP) or a 504 Plan, may be able to help your child get the extra support that he or she needs and deserves.
The Individuals with Disabilities Act (IDEA) is a federal law that ensures a child receives special education and related services as long as he or she has a qualifying disability and attends a school that gets financial support from the federal government. IDEA is enforced through IEP plans that are run by states, districts, or schools.
The 504 plan works to ensure that a child with certain physical or mental impairments has accommodations to access learning and achieve success in the classroom.