Connect and Learn with the UCD community

Here you can be a part of an engaging and connected community of people who have UCDs and their caregivers. Through our live events and newsletters you can learn more about what it’s like to live with a UCD, hear about others experiences and get community support.

Events can include low-protein cooking classes, expert speakers sharing information about UCDs and more. These events aren’t just educational, they’re also a way to share experiences, have fun and eat well.

Please bookmark this page and be sure to check back often to see if there's an upcoming event at a location near you.


If you’re interested in attending an event, email us at and let us know where you’re located and what types of events you’d like to attend. We’ll let you know when we have an event in your area.

Please note that the urea cycle disorder events are offered only for people living with a urea cycle disorder and their families.

Upcoming Events