Connect with the UCD community

Join an engaging community of people who have UCDs and their caregivers. Through our live events, you can learn more about what it’s like to live with a UCD, hear about others' experiences, and find support.

Events can include low-protein cooking classes, expert speakers sharing information about UCDs, and more. These events aren’t just educational, they’re also a way to share experiences, have fun, and eat well.

To learn about upcoming events and to get on the invite list, email