Being diagnosed with a urea cycle disorder (UCD) is the first step on a lifelong journey, and it helps to know there are others who have been in the same situation. We understand and have put together resources to help you live a full life with a UCD. Making decisions about care is the next step in learning how to manage a UCD. Sometimes it can feel daunting, but seeing questions that other people with a UCD have asked and learning the answers can help you better manage your UCD.

“Success with a UCD is possible.” Denise describes
how she sets goals for living her best life with a UCD.

My Story: Denise

Urea cycle disorder FAQs (frequently asked questions)

Here are some frequently asked questions and answers to help you learn more about urea cycle disorders (UCDs) and to clear up some common misunderstandings.


Download These UCD Resources

Track food, exercise, and symptoms to help you manage your ammonia levels

Download a UCD Tracker

Cook delicious, UCD-friendly meals

Discover new low-protein recipes