Watch Denise and Lupe talk about what it’s like
living with a rare disease that no one can see

Invisible Disease

If you or a loved one are diagnosed with a urea cycle disorder (UCD), you should know that you’re not alone. There are many resources available to you and your family, including UCD education, management support, and a community ready to help and guide you. You can also get practical advice and tips from others who know what you’re going through which can make it easier to live with a UCD. 

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Urea cycle disorder daily tracker notebook

Urea Cycle Disorder Tracker

Tracking food, exercise, and symptoms plays an important role in helping to manage ammonia levels. Some people like to write down this information in a notebook, while others use digital apps to keep track. The best method to choose is the one that will be the easiest for you to use throughout the day.

Get started with a UCD Tracker that helps track protein, fluids, calories, UCD symptoms, and more.

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Success is different for everyone. Learn how it has changed over time for Lupe and her daughter, Isabel.

Lupe & Isabel

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