When you or a loved one gets diagnosed with a urea cycle disorder (UCD) it can be overwhelming. Questions come up right away like, what do I do next? What steps should I be taking? How is this going to change my life? Is there anyone I can talk to about UCDs?
Yes! There is a thriving community of people who have a UCD and those who care for them. Join us for a UCD community event to connect and hear about others' experiences. On social you can join the UCD in Common Facebook page and connect there.
There are many organizations within the urea cycle disorder (UCD) community that can provide support along your UCD journey.