Living With a Urea Cycle DisorderTips for Sharing Your Medical InformationSharing Information About Your UCD

Sharing Information About Your UCD

A urea cycle disorder (UCD), like any medical condition, can be a private thing. But it's important to share some basic information with friends, family, school staff, and coworkers. Make sure you explain what a UCD is and what kind of help you might need in an emergency.

This guide offers tips about what information might be helpful for others to know. You can use it to help you decide what to share with whom.

Download

Did you know there is a comic book series about UCDs?

Watch the video

How well are you managing your ammonia levels?

Take the survey